Raina cared about helping people. We have built a foundation in her name to carry out her wishes.
Raina J.H. Evans Foundation
Scholarships.
Raina believed that building knowledge, even the face of adversity was necessary. She was always an avid reader and an amazing musician with perfect pitch and a memory to match. After histiocytosis invaded her life she changed her direction and pursued Environmental Engineering, determined to make it a future career and to help protect this world and even beyond. We will honor her with a named scholarship in the foundation to be awarded yearly to a deserving student.
Research
Hystiocytosis disorders are rare. Research is needed and genetics is the key. In the future, we will have a yearly drive to raise funds for research and work with our partners to allocate the proceeds.
Information
It is important as a patient caregiver or health professional to understand histiocytosis when you are forced to confront it. It is also important for those involved in providing the resources to care for this diseases to understand what is important in rare diseases. We will work to that end to increase knowledge among all those involved and in need to make a difference.